A new study highlights the importance of genuine collaboration with people who have lived experience of mental health conditions in combating stigma and discrimination. The research reveals the role of language, media representation, and societal reactions in perpetuating harmful stereotypes and emphasizes the need for involving individuals with lived experience in developing effective anti-stigma activities.
The Role of Lived Experience in Combating Mental Health Stigma and Discrimination
Media and anti-stigma activities have the potential to combat mental health stigma and discrimination, but a new study from King's College London highlights the importance of genuine collaboration with people who have lived experience of mental health conditions.
The research, conducted in partnership with the Global Mental Health Peer Network and published in eClinicalMedicine, is the first to co-produce research with individuals who have personal experience of mental health challenges to explore global perspectives on stigma and discrimination.
The study involved 198 participants from over 30 countries across Europe, the Americas, Africa, Asia, and Australia/Oceania. These individuals shared their insights on how language, media representation, and societal reactions contribute to the perpetuation of stigmatizing views.
The Impact of Insensitive Language and Misinformation on Mental Health Stigma
One key aspect highlighted by the study is the tokenistic involvement of people with lived experience in anti-stigma campaigns. Such superficial inclusion resulted in weak campaigns with limited positive impact.
The research emphasizes that individuals with lived experience play a crucial role in efforts to reduce stigma and discrimination and that genuine collaboration is essential.
Participants in the study reported that terms used for mental health conditions, both in informal and healthcare settings, often carry derogatory or insensitive connotations, reinforcing stigma and discrimination.
The Importance of Genuine Collaboration and Meaningful Participation
The study's authors underscored the need for genuine collaboration and meaningful participation of individuals with lived experience in all stages of planning, delivering, and evaluating anti-stigma programs.
This study aligns with the recommendations of The Lancet Commission on Ending Stigma and Discrimination in Mental Health, which called for global action to end stigma and discrimination against people with mental health conditions.
In conclusion, involving individuals with lived experience in combating mental health stigma and discrimination is essential. With genuine collaboration and meaningful participation, we can work towards a more inclusive and understanding society for individuals with mental health conditions.